Make a Difference for Maddie

GIVING BACK: Make a Difference for Maddie

As a parent, it’s the unthinkable. You’ve just been handed a diagnosis that your child is dying. One moment, the world makes sense and the next it’s an incomprehensible blur of shock, disbelief, anger and unfathomable grief. This is the reality for Collie and Kajsa James. On January 14th of this year, their healthy, vibrant 5-year- old daughter, Madeleine Reese James, was just like every other kindergartner at St. Anne School, laughing with her friends on the playground. Two days later, they were told their only child was going to die.

Maddie’s Story
After Maddie’s mother noticed that she appeared “more tired than usual” and that “her balance seemed a little off” she was taken to Children’s Hospital of Orange County (CHOC) where a CT scan uncovered a malignant, inoperable brain tumor known as Diffuse Intrinsic Pontine Glioma (DIPG). Located on the brain stem where the spinal cord meets the brain, it is the most feared pediatric brain tumor. Within weeks, the disease causes a deterioration in the ability to walk followed by a steady loss of motor control throughout the body. There is no cure. The survival rate is zero. Kajsa’s and Collie’s only solace was that the disease did not typically cause significant pain. The James’ had a mission to do something positive to properly honor Maddie’s memory. Knowing her love of the sea and everything under the waves, they immediately thought of The Ocean Institute in Dana Point. Maddie often referred to it as “the best place ever” and would stick the name tags she received daily at Sea Camp to her bedroom wall.After contacting the Ocean Institute with Maddie’s story, Kajsa and Collie learned of its expansion plans for an educational center that would cater to children, like Maddie, that have a passion for the ocean. Their mission became even more clear when Maddie saw Kajsa looking at the plans and she asked what they were. When Kajsa explained, Maddie said, “That’s so cool, mommy. Are we going to help them build it?” With all her heart, Kajsa responded, “Yes, Maddie, we are.”The Ocean Institute is currently in the final phase of it’s $4M Capital Campaign to build the new Seaside Learning Center. To be built right “on the water,” the facility will introduce thousands of K-12 students and public visitors to current and emerging issues in oceanography, environmental science and maritime history. A series of learning stations have been carefully designed for the Seaside Learning Center to provide immersion-style education.

Maddie passed on March 13th, 2011. Her ashes will be spread at sea, but her parents are determined to see her memory live on through the Maddie James Foundation.

The Seaside Learning Center project is shovel-ready with all permits in place. What’s needed are the necessary funds to make it happen. Depending upon success with fundraising, construction is planned for summer/fall of 2011.

How You Can Help
The Maddie James Seaside Learning Center would be possible with a donation of $1,000,000 from the Maddie James Foundation. Please support and contribute to the foundation’s goal. To make a tax deductible donation to the Maddie James Foundation, visit www.maddiejamesfoundation.org

Several upcoming fundraising events also offer opportunities for  you to make a difference:

April 3rd at LEGENDS SALON: $25 HAIRCUTS
(at any of their three locations)
All Proceeds to Benefit the Foundation

April 3rd at OC Tavern:
5 p.m. – 9 p.m.
20% of Your Entire Bill
Goes to the Foundation

April 15th – 17th at Ortega Car Wash:
Bring in this Article and $5 will be Donated From Each Car Wash
www.MaddieJamesFoundation.org

www.Ocean-Institute.org